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Teen shares her moving journey with alopecia in new book
A teen's new book chronicles her personal journey with alopecia, and caught the attention of CBS New York for its raw honesty and heart.
Apr 17


Showing my true self to the world with alopecia: "I wanted to be free, I feel liberated"
By Aziza Shuler on September 14th, 2023 PHILADELPHIA (CBS) -- A member of our CBS News Philadelphia family, weekend anchor Aziza Shuler, has been hiding something about herself for years. But not anymore. She's ready to open up to us about a story personal to her. How I look is an important part of my job. The makeup, wardrobe, all under the lights in the studio It's an effort to look perfect when I come on your TV screen to bring you the news. But perfection isn't just a pa
Sep 16, 2023


AJL Takes on PIX11
Last Tuesday, two AJL co-founders - Alison Lee and Dr. Kristen Lo Sicco - were interviewed live on PIX 11 regarding the recent FDA...
Aug 8, 2023


New Hair Loss Treatments for Teens with Alopecia Comes After Years of Limited Options
By Adrianna Rodriguez on June 23, 2023 Alison Lee felt a slight tug at the back of her head. Her dark wig slipped off in an instant, revealing her hairless scalp to the shining sun, the cool breeze, and her entire third-grade class during recess. She grabbed at her head and turned around to see her classmate hanging the hairpiece in his hands. Lee, now 17, remembers the incident as vividly as if it were yesterday. It’s one of the many memories around her alopecia areata, an a
Jul 9, 2023


The Bald Pack Journals (S2): Alison Lee
AJL Co-Founder Alison Lee recently appeared on the Those Bald Chicks Podcast. Make sure to listen to the episode and follow their account...
Jun 23, 2023


Durable Medical Equipment and Medicare Reform
Since I was very young, I have lived with alopecia areata which has stripped me of all my hair. Because of my autoimmune condition, I endure the stigma surrounding baldness daily. This condition has deeply informed my perspective regarding empowering hair loss legislation. Specifically, I advocate for H.R. 5430, which will mandate insurance coverage for cranial prosthetics (wigs) under Medicare. High-quality wigs, which are imperative to the mental health of many with hair lo
Nov 26, 2022


Wigs Aren’t Mandated Under Medicare, But I Want To Change That
By Alison Lee on October 18, 2022 I've had alopecia areata — a condition which sees the immune system attack hair follicles, resulting in hair loss — since I was five years old. Now aged 16, I'm the co-founder of the Alopecia Justice League, and I'd like to take you on a hair advocacy adventure. For the past 11 years of my life, I've worn a wig. Much like a chameleon, it was tied into pigtails for the first day of school, put into a French twist for a dance show and styled fo
Oct 18, 2022


10 Things I’ve Learned About Dating with Alopecia
I was diagnosed with alopecia areata, an autoimmune disorder that causes your hair to come out, at the age of 2 and just celebrated my 30th
Oct 10, 2022


SK(IN) DEPTH Advocacy
The extent of the problem: 25.2% of patients living with alopecia areata (AA) describe a serious economic burden, and 18.2% indicate...
Oct 9, 2022


Alison Lee and the Alopecia Justice League Are Teaming Up to Change the World
“Because everyone has hair, it is challenging to grasp life without it,” Lee says. “It is even more difficult for individuals to empathize w
Sep 9, 2022


Alison Lee on the Alopecia Justice League & Never Being Too Young to Implement Change
Very Nearly Almost | April 22, 2022 The teen years can be some of the toughest to face having alopecia, but Alison Lee has taken her...
Apr 22, 2022
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